Subprojects

Channelling participation

Investigator: Arturs Holavins

This subproject focuses on the practices of regulating patient organisations’ activities by the state.

Concealing participation

Investigator: Alyona Lammers

This subproject focuses on the practices of bottom-up localised repairments of the drug distribution system by the patients.

Standardising participation

Investigator: Claudia Egher

This subproject focuses on the practices of designing toolkits and frameworks for patient engagement in drug development by industry.

Extricating participation

Investigator: Anastasia Stoli

This subproject focuses on the practices of subverting the established process of bringing medicines to the market by DIY technology developers.

Theorising participation

Investigator: Olga Zvonareva

This subproject focuses on the practices of conceiving and valuing participation in social sciences. It will integrate the case-based insights from the rest of the subprojects for theorising informal participation.